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Health Democratization

Health Democratization

Reinforcing the Health Data Infrastructure in Mobility and Assurance through Data Democratization: Health data has immense scientific, societal, and commercial value. This can provoke cyber attacks and black market targeting of this data. The sharing and utilisation of health data poses legal, ethical/privacy, and technical challenges, which significantly limit the realisation of these values. There is a structural deficiency in the conventional health data infrastructure regarding secure data sharing and trust management. In this project, we aim at a democratic approach with a computational platform to incentivise different parties in a health data ecosystem to define, negotiate, and manage their respective rights, obligations, and the benefits associated with health data in a trusted and efficient way. As all parties can use a common set of technical and procedural protocols for data sharing, they can trade their rights, obligations, and relevant benefits in an equal stance.

The project plans to contribute to the national health data infrastructure via the collaboration with the national project Helseanalyseplattformen. The project is also in liaison with the EU H2020 project My Health My Data.

Research Questions

  • What are the common elements that can be abstracted from diverse data transaction scenarios, and how to model them into functions and protocols applicable to all parties?   
  • What benefit can be brought by modelling data sharing in a trading perspective and what are its impact on the social, ethical, and economic aspects?
  • How to model the risk and incentive for data mobility in an open environment with multiple parties of conflicting interests in rights negotiation?
  • How to automate the configuration and validation of policies and rights across parties?
  • How to technically engineer and evaluate the democratic health data infrastructure?

NR's contributions

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National Kickoff Meeting
Department

Financing

The Research Council of Norway, IKTPLUSS. Budget: 27 million NOK (5 PhD/PostDoc positions and permanent research staff).

Partners

Coordinator: NTNU, Department of Information Security and Communication Technology (IIK)

NTNU: Department of Public Health and Nursing (ISM), Department of Manufacturing and Civil Engineering (IVB), and Department of Computer Science (IDI).

SINTEF Security

Norsk Regnesentral (Norwegian Computing Centre)

Norwegian Directorate of eHealth

Inland Hospital

International partners: Maastricht University, Katholieke Universiteit Leuven

Sub-Contractors: TicSalut, Tecnalia, Lynkeus, and Kallistech.

Postal address:
Norsk Regnesentral/
Norwegian Computing Center
P.O. Box 114 Blindern
NO-0314 Oslo
Norway
Visit address:
Norsk Regnesentral
Gaustadalleen 23a
Kristen Nygaards hus
NO-0373 Oslo.
Phone:
(+47) 22 85 25 00
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Postal address: Norsk Regnesentral/Norwegian Computing Center, P.O. Box 114 Blindern, NO-0314 Oslo, Norway
Visit address: Norsk Regnesentral, Gaustadalleen 23a, Kristen Nygaards hus, NO-0373 Oslo.
Phone: (+47) 22 85 25 00
AddressHow to get to NR